BACKGROUND: A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. METHODS: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. RESULTS: Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. CONCLUSION: Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.

Rich, A., Baldwin, D., Alfageme, I., Beckett, P., Berghmans, T., Brincat, S., et al. (2018). Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries. BMC CANCER, 18, 1144-1155 [10.1186/s12885-018-5009-y].

Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

Elia S;
2018-11-20

Abstract

BACKGROUND: A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. METHODS: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. RESULTS: Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. CONCLUSION: Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.
20-nov-2018
Pubblicato
Rilevanza internazionale
Articolo
Esperti anonimi
Settore MED/21 - CHIRURGIA TORACICA
Settore MED/06 - ONCOLOGIA MEDICA
English
Con Impact Factor ISI
Audit; Data collection; Datasets; Epidemiology; Lung Cancer
Rich, A., Baldwin, D., Alfageme, I., Beckett, P., Berghmans, T., Brincat, S., et al. (2018). Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries. BMC CANCER, 18, 1144-1155 [10.1186/s12885-018-5009-y].
Rich, A; Baldwin, D; Alfageme, I; Beckett, P; Berghmans, T; Brincat, S; Burghuber, O; Corlateanu, A; Cufer, T; Damhuis, R; Danila, E; Domagala-Kulawik, J; Elia, S; Gaga, M; Goksel, T; Grigoriu, B; Hillerdal, G; Huber, R; Jakobsen, E; Jonsson, S; Jovanovic, D; Kavcova, E; Konsoulova, A; Laisaar, T; Makitaro, R; Mehic, B; Milroy, R; Moldvay, J; Morgan, R; Nanushi, M; Paesmans, M; Putora, P; Samarzija, M; Scherpereel, A; Schlesser, M; Sculier, J; Skrickova, J; Sotto-Mayor, R; Strand, T; Van Schil, P; Blum, T
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/2108/247906
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